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Support group details

Group name
Bardet-Biedl Australia
Website
www.bardetbiedlaustralia.org/
Group description
Bardet-Biedl Australia is a website to help people establish contact with others affected by the syndrome. It is not a support group. There are also great links to the official international support groups and latest research on the syndrome.
Who can join
People diagnosed with Bardet-Biedl can contact and family, carers, interested parties are welcome to access &, contact on the website for more information.
Contact hours
Email anytime. Contact is returned as soon as possible.
Where we meet
Town/Suburb
Services
Email and Online Support.
More Info
Bardet-Biedl Australia is not a support group. It is someone with the syndrome trying to help people connect with others and raise the profile of the syndrome in Australia. This primarily occurs through Facebook.
Specific issue/condition/disease
Bardet-Biedl Syndrome. Also support those that may have been diagnosed as Laurence-Moon-Bardet-Biedl Syndrome or Laurence-Moon-Syndrome. Years previously the condition was known as Laurence-Moon-Bardet-Biedl Syndrome however this was split into 2 conditio
Area serviced
Australia wide
Phone contact
0414 728 528
Contact the group by email

Email Contact

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