The CJDSGN provides information and support to families who are caring for, or coming to terms with the loss of a loved one to CJD or other prion diseases.
The CJDSGN is committed to providing resources to educate and inform family members and carers of patients, to facilitate informed decisions and provide best possible patient care. The CJDSGN also supports and assists people ‘at increased risk of developing CJD’ by promoting an environment in health care settings where patients feel comfortable and confident of receiving equity of care when disclosing their at risk status.
- Phone support
- Face to face meetings
- Information packages
- Education program
- Annual national conference
- Creutzfeldt-Jakob disease (CJD) and other prion diseases including FFI and GSS.
Anyone affected by prion disease in Australia