Supporting people to find their own solutions to improve well-being

CJD Support Group Network

Current Size: 100%

Contact Details

Acronym: 
CJDSGN
Phone 1: 
(02) 9899 8905
Freecall: 
1800 052 466
Address: 
13 Araluen Place
GLENHAVEN NSW 2156
Australia
Contact Hours: 
24 hours

Group Description

The CJDSGN provides information and support to families who are caring for, or coming to terms with the loss of a loved one to CJD or other prion diseases.
The CJDSGN is committed to providing resources to educate and inform family members and carers of patients, to facilitate informed decisions and provide best possible patient care. The CJDSGN also supports and assists people ‘at increased risk of developing CJD’ by promoting an environment in health care settings where patients feel comfortable and confident of receiving equity of care when disclosing their at risk status.

Area Serviced

National

Services

Services/Activities: 
  • Phone support
  • Face to face meetings
  • Information packages
  • Advocacy
  • Education program
  • Annual national conference
Specific issue 
  • Creutzfeldt-Jakob disease (CJD) and other prion diseases including FFI and GSS.
Who can join 

Anyone affected by prion disease in Australia

Membership Fee 

Nil

Additional information 
The CJDSGN offers support, information and assistance for family members and friends of patients suffering with suspected CJD and other prion disease and for those at increased risk of developing CJD. The primary goal of the CJDSGN is to be part of your support system and assist you in anyway that we can.