Bardet-Biedl Australia is a website to help people establish contact with others affected by the syndrome. It is not a support group. There are also great links to the official international support groups and latest research on the syndrome.
- Email and Online Support.
- Bardet-Biedl Syndrome. Also support those that may have been diagnosed as Laurence-Moon-Bardet-Biedl Syndrome or Laurence-Moon-Syndrome. Years previously the condition was known as Laurence-Moon-Bardet-Biedl Syndrome however this was split into 2 conditions based on differing symptoms. In Australia most people for the last 30 years have been diagnosed as either Bardet-Biedl or Laurence-Moon. We face many of the same issues and welcome both syndromes.
People diagnosed with Bardet-Biedl can contact and family, carers, interested parties are welcome to access & contact on the website for more information.